those who read it. I want my page to serve as a place where one can go for a pick me up when it is needed. I also want to use this space to share my journey as a caretaker of a parent with Huntington’s disease (HD).
My mission in life is to help others, whether it is to help someone see past their diagnosis or assist someone who is having a tough time, and show them that they can still have an amazing, fulfilling life. I am a firm believer that the minute you stop focusing on the parts of your life that you cannot change or those in which you have zero control suddenly things begin to look very different.
Trust me; I know what it is like living life fully aware that I have a 50 percent chance of meeting the same fate as my dad– you are not alone. I am also very familiar with the feeling of not wanting to get out of bed and deal with life, but I want to show how perspective can be an amazing way to cope with the unknown.
This idea of this blog is not new to me. In fact, I have started writing it many times, only to decide against it out of fear of exposure of vulnerability. However, I was recently searching for support materials and books on HD and found them to be nearly nonexistent. This prompted me to take the leap to ensure that those who need support or a friendly voice in this fight have somewhere to find it.
Even if this blog only reaches one person and helps them feel less alone in their situation, then the leap is entirely worth it. I am no doctor, I do not have any degrees regarding the subject, and I am nowhere near a writer of any sort, but what I am is someone who wants
to help make a difference in the world, especially the world of HD.
I can assure you that there will be endless typos, run on sentences, and commas will be missing, but that is not what I am here. I am here to inspire those who read this and lift them up when they need it. There is a chance that no one will read this, and that is okay too. I am sure that this will serve as much as a therapeutic tool for me as it could for others.
This is a judgment free space and I am hoping to maintain a judgment free zone as long as this page is up. One of my main goals, as previously mentioned, is to provide a space that is full of love and support that I feel the HD community is missing. The angels on earth
known as social workers can only do so much.
I made a deal with myself in 2016 that I was going to work on communicating more effectively with all of those around me. I have never been one to talk about my feelings or struggles with anyone, which more than likely stems from growing up in a home where no one openly discussed or even acknowledged feelings. Even so, I began having this urge to get my story out. I wanted to share my hopes, dreams, and fears. I wanted to share it so others know that they are not alone, and writing has always been the easiest outlet for me.
My ultimate goal is to help someone find his or her inner badass warrior I know that no matter what you are going through that badass warrior IS in there somewhere just
waiting to be unleashed!!! Please know, that no matter how deep you are in, there is always a way out. We need to band together and offer kindness and acceptance to every single person we meet!